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Sue Cleland's Personal Story
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I am telling my story,
because if it means that it brings hope to just one person who lives with Social
Anxiety Disorder, that recovery is possible, then it is worth it. I will start
by sharing with you some of my experiences of living with Social Anxiety
Disorder. I will then go on to explain to you how I believe I developed this
illness, its symptoms, the effect it had on all facets of my life, the coping
mechanisms I used, as well as explaining how the disorder was never recognised
or treated for twenty years, and resulted in the development of more complex
related conditions.
If you have been
diagnosed with Social Anxiety Disorder, or you think you may have Social Anxiety
Disorder, you will probably be able to relate to my experience. I hope it helps
you to understand that you are not alone, and that treatment is available that
can help you to overcome your fears and live a more meaningful and satisfying
life, free from extreme fear.
Some
thoughts and experiences that were real to me...
- To remember very
little about your childhood, your teenage years, conversations held, because
you may have been there physically, but mentally you were worrying about who
was around you, who was watching, who was listening and what they were
thinking of you
- To wake up in the
morning with a chest that feels like it is strangling you
- To dread the day ahead
- To develop a pair of
eyes in the back of your head so that no matter where you are you are
constantly aware of what is happening all around you and what potentially
could happen
- To walk down the
street and believe that everyone is looking at you, staring from cars, from
buildings - people you cannot even see, waiting for you to trip over and
make a fool of yourself, judging the clothes you are wearing, the way you
walk.
- To be asked out on a
date and end up with your drink all down your front because you were shaking
so much you missed your mouth.
- To look into someone's
eyes while they are talking to you and believe that they can see straight
into your soul and know that you a quivering mess inside
- To live with a mind
that is constantly in motion, with a head full of negative self talk,
thinking, analysing, predicting everything that is around you every minute
of the day.
- To be unable to relax
- To believe that you
don't belong here, that you don't fit in, and there is no one like you in
the world, to feel like a misfit.
- To pack up your
belongings and move house 18 times in 12 years because you think that by
moving you will find happiness
- To drink alcohol
before leaving the house for a social event
- To worry weeks in
advance before giving a presentation to the point where you make yourself
sick and then make up some excuse the day before that you cannot do it.
- To worry days, months,
years later about a silly comment you made to a friend, a colleague
- To desperately want
help but to be unable to reach out for it because that will only confirm
that you are weak, pathetic and useless
- To be incredibly self
critical and self conscious
- To have no one tiny
bit of respect or self worth for yourself
- To blame yourself for
everything that goes wrong
- To overact
- To cry yourself to
sleep
- To be a perfectionist
in everything you do and punish yourself if what you do is not perfect
- To be dependant on
your partners to protect you from the big bad world so you won't let them
out of your sight
- To shake
uncontrollably in front of the public, in front of your peers, in front of
your colleagues and have no understanding of why that was happening
- To be constantly on
guard for the next time you might have a panic attack
- To stare out the
window for hours on end dreaming of another life, another place, another
time. Anywhere but here, any life but yours.
- To think about death
on a regular basis
- To watch your soul
disintegrate and not be able to do anything about it
- To constantly seek
approval in everything you do or say
- To find it almost
impossible to make your own decisions
- To feel naked wherever
you go, with all your vulnerabilities, and insecurities exposed for everyone
to see
- To sense that people
are constantly watching you, thinking about you, criticizing you,
scrutinizing you.
- To pre-empt every
conversation you are about to have, word for word, sentence for sentence,
and pre-empt the response, which more often than not is negative
- To run home at the
first chance you get
- To wonder if it will
ever end, to wonder if you will end it
This is the life of
someone who lives with Social Anxiety Disorder. This was my life until I was
diagnosed with Social Anxiety Disorder and received treatment.
My
personal background to the development of Social Anxiety Disorder
- I grew up in Melbourne
where I completed my secondary schooling and went on to study various
different courses.
- I had a normal
childhood and upbringing with very caring parents
- I am the middle of
three children
I believe I developed Social Anxiety Disorder
when I was around 10 years old and it intensified over the years due to the
following factors...
- Genetic sensitivity
- Feelings of inadequacy
and beliefs of being different as I was adopted as a baby
- Particular
environmental situations which were stressful and fearful
- Perceived extreme
pressure to conform with my peers in the community in which I grew up
These factors
combined lead to...
Irrational
thought processes that became entrenched at an early age and lead to the
following beliefs:
- I believed I was
worthless, not good enough, that my opinion did not matter
- I believed that
everyone who came in contact with me would judge what I said, how I behaved,
and scrutinise me
- I believed I had to be
perfect in everything I said or did and approved of by every person in my
life.
- I had a very poor body
image
- I was extremely
fearful of people in positions of authority, and all men in general
- I was extremely
fearful of being embarrassed or humiliated in public
This entrenched
belief system lead to the following symptoms which are characteristic of people
who live with Social Anxiety Disorder...
- High levels of anxiety
when in public, around authority figures, and groups of people
- High levels of
anticipatory anxiety while at home
- Panic attacks on a
regular basis (1st at 15years of age)
- Low self worth / low
self esteem / feelings of inadequacy
- Depression and all the
symptoms that come with it
- Isolation
- Insomnia
- Very high expectations
on myself
- I viewed my world as
negative and only focused on negative stimulus from others even though at
the time I was not aware that I was doing that
- Failed relationships
- Lack of occupational
goals and direction
- Suicidal ideation
- Extreme mood swings
- Labile affect
- Anger
- Sweaty hands
constantly
- Blushing
Coping
mechanisms I used before treatment included...
- Avoidant behaviour
- Alcohol Abuse - binge
drinking/self medicating especially before social events
- Dependency on partners
- Acute Awareness of
everything around me
- Constantly on guard
- Moving house on a
regular basis
- Binge eating patterns
The symptoms mentioned
intensified over 20 years and became worse. Over time I developed other
conditions including symptoms of depression.
At age 15 years and again
at 22 years I saw two different psychiatrists to try and understand what was
going on in my mind. No diagnosis was ever given. Instead I received a
prescription for anti-anxiety tablets to take when I felt 'nervous'. This
medication only relieved my symptoms temporarily, and was definitely not an
answer to my troubles.
At the beginning of 1999
I experienced panic attacks every day. In March 1999 I was given a
diagnosis of Social Anxiety Disorder. This was the turning
point in my life.
Treatment included
anti-depressant medication, Cognitive Behavioural Therapy, self-esteem work,
relaxation techniques, perception/assertion training, interpersonal skill
training, public speaking courses, focusing skills and meditation. Most of the
therapy after my discharge from hospital I undertook myself due to a lack of
experienced therapists in Queensland who work specifically with people who have
been diagnosed with Social Anxiety Disorder.
Recovery was also made
possible through the good support from my treating psychiatrist, my family and
close friends, and a strong belief in myself that I could overcome the illness
as I did not want to live with such extreme fear and anxiety every minute of my
day anymore.
Since undertaking
treatment I have not experienced one panic attack and my level of anxiety has
now decreased to within normal limits. I am now much more content, and confident
with my life and myself. I am now in control of my emotions and my thoughts, and
I now view my world in a rational way, as well as finally having developed a
sense of self worth and a belief that I am worthwhile.
Beliefs
I now practice...
- I now believe that
everyone is 100% responsible for their own thoughts and beliefs in life
which affects the way people feel and behave
- I now know that there
is always more than one way to perceive any given situation
- I also believe that it
doesn't matter if not everyone I meet takes a liking to me or likes what I
say.
- I believe there is no
such thing as perfection, it is only someone else's standard
- I believe there is no
such thing as a mistake, only an experience that did not work out as I would
have liked.
- I am no longer
dependant on others to make me feel good
- I believe in myself
and my own self worth
- I now believe that
people are not to fear and I am not being judged all the time
- I now have the power
to make choices in my life that are right for me and the belief that I can
achieve whatever I set out to
- I no longer live a
life of fear, and for the first time in twenty years I feel like I have only
just begun to live my life
From the age of thirteen
years to thirty years my level of contentment with my life and myself fluctuated
from 0% - 50%.
Today, after treatment, I am
now 90% content with my life and myself, happy and relieved that I have now
found the key to start my life again, free of fear.
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here to return to the Shyness & Social Anxiety Service of Australia site
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